Cystic Fibrosis Model of Care

Aim

  • Maintain or improve the health and wellbeing of people with CF
  • Provide consumers with greater choice for how and where care can be safely and effectively provided
  • Improve care and support provided to for people with CF, with additional focus on young people 15-24 and those with severe disease.

Benefits

  • Better meet the health care needs of people with CF in NSW now and into the future
  • Build capacity within the health system to provide timely and effective care

Summary

The MOC details an expanded service delivery model in which the adult and paediatric Cystic Fibrosis Specialist Services provide lifelong clinical management and directly coordinate care within a designated network of service providers including Cystic Fibrosis Satellite services, Hospital in the Home services, Transplant Units, Cystic Fibrosis NSW, Palliative Care, GPs and local service providers.

Background

There has been a significant increase in survival for people with CF. Almost half the Australian CF population are now adults and the current life expectancy is 37 years. The change in the population demographic has been the driver for statewide service planning to ensure the health care needs of people with CF are better able to be met now and in the future.

Partnerships

  • NSW Kids and Families 
  • NSW Newborn Screening 
  • Cystic Fibrosis Australia 
  • Cystic Fibrosis NSW

Key Dates

Pilot Sites

Implementation Sites

Evaluation

A multifaceted evaluation will monitor indicators for access to care, admitted-patient activity, service partnerships and patient and staff satisfaction.

Related Initiatives

Further Details

For further information contact the ACI Respiratory Network Manager.

Contact

Cecily Barrack
Respiratory Network Manager
cecily.barrack@health.nsw.gov.au
02 9464 4625

Daniel Comerford
Director, Acute Care
daniel.comerford@health.nsw.gov.au
02 9464 4602

Page Top | Added: 8 November 2013 | Last modified: 15 January 2016

ACI
Status:
Contact:
Cecily Barrack
Respiratory Network Manager
Email
02 9464 4625
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